http://www.migrainereliefblog.com/trileptal-and-migraine-prevention/ Sun, 05 Feb 2012 03:49:01 +0000 hourly 1 http://wordpress.org/?v=3.2.1 http://www.migrainereliefblog.com/trileptal-and-migraine-prevention/comment-page-1/#comment-13928 Susan Tue, 24 Aug 2010 03:36:56 +0000 http://www.migrainereliefblog.com/prevention-of-migraine-headaches/trileptal-and-migraine-prevention-45/#comment-13928 I was prescribed a daily trileptal dose of 1500 mg in my late 40s--about 21 years after experiencing successful neurosurgery with regards to epilepsy. The trileptal has been devastating to me--headaches in the middle of the night, low sodium readings, nausea and vomiting. My trileptal-related headaches were NEVER migraines. (I know that because the only migraine I ever experienced was followed an extreme caffeine addiction that I was initially totally unaware of. Ironically, I stopped drinking my favorite Coca Cola in preparation to make the transition from dilantin to trileptal.) Once I was on trileptal, the only cure from those 3 a.m. headaches--bad enough to wake me up--was to get up and sit at. . .what else? The Internet, of course! No aspirin, motrin, or anything else would work! I'm still on trileptal, still experiencing these nighttime headaches and low sodium levels, even after being on this drug for 2+ years--more than enough time to adjust to this relatively unfamiliar drug, but never did. Until I'm able to afford a visit with Dr. A. Shah (of the Detroit area), I'll continue to live with this drug as best as I can. While I do believe that previously relying on 400 mg dilantin for many, many years was no longer necessary beyond my neurosurgery, I do regret not having stayed on it when compared to the unexpected side effects of trileptal. I don't like being on trileptal, and probably will never benefit from it. I was prescribed a daily trileptal dose of 1500 mg in my late 40s–about 21 years after experiencing successful neurosurgery with regards to epilepsy. The trileptal has been devastating to me–headaches in the middle of the night, low sodium readings, nausea and vomiting. My trileptal-related headaches were NEVER migraines. (I know that because the only migraine I ever experienced was followed an extreme caffeine addiction that I was initially totally unaware of. Ironically, I stopped drinking my favorite Coca Cola in preparation to make the transition from dilantin to trileptal.) Once I was on trileptal, the only cure from those 3 a.m. headaches–bad enough to wake me up–was to get up and sit at. . .what else? The Internet, of course! No aspirin, motrin, or anything else would work! I’m still on trileptal, still experiencing these nighttime headaches and low sodium levels, even after being on this drug for 2+ years–more than enough time to adjust to this relatively unfamiliar drug, but never did. Until I’m able to afford a visit with Dr. A. Shah (of the Detroit area), I’ll continue to live with this drug as best as I can. While I do believe that previously relying on 400 mg dilantin for many, many years was no longer necessary beyond my neurosurgery, I do regret not having stayed on it when compared to the unexpected side effects of trileptal. I don’t like being on trileptal, and probably will never benefit from it.

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